Youth Rally Materials
Links to other great sites and pages
Association for the Bladder Exstrophy Community (ABC)
Band-aides & Blackboards (When Chronic Illness – or other medical problem – goes to School):
sections for kids, teens & parents
Crohns & Colitis Foundation of America (CCFA)
- Kids & Teens Section
- Locate a physician near you
Discussion Board Just for Teens (free & simple registration required)
Growing Up IBD: personal stories - and more - about how IBD affects kids’ lives
J-Pouch Group: Discussion and info for those with an ileo-anal anastomosis
Osto-Group: help obtaining supplies when the family has no insurance
Pull-thru Network (PTN)
- For families with a member who is affected by a congenital colorectal, anorectal or urogenital disorder and any of the variety of related disorders
- “Pull-thru Network News” published 4 times a year (with membership)
- List-serve available
Spina Bifida Association (SBA)
United Ostomy Associations of America (UOAA)
- List of support groups (for support – also potential Rally sponsors)
- “Phoenix” magazine published 4 times a year
- Discussion Boards for Teens, Parents, those with continent diversions, other
Wound, Ostomy & Continence Nurses (WOCN)
- Professional Society for nurses who specialize in these fields
- Locate a nurse near you